Big Data is reinventing how we address global healthcare challenges. Good quality healthcare data, and lots of it, can power groundbreaking medical innovation. Data informs strategic healthcare policies, and can potentially, when used in collaboration with Artifi cial Intelligence technology, minimize global health risks through improved prediction. Factors such as rampant bad data as well as public distrust in data privacy and digital healthcare solutions, continue to present significant challenges.

Christine Jacob, Founder and Managing Director of Digi-Bridges will present: The Promise of Health Data: Is it really the new Oil?
The Big Data generated by Digital Health tools has without a doubt improved our ability to manage care. It enables us to synthesize data automatically and present dynamic summaries that can help support decision-making and even predict health problems before they arise, leading to a better quality of care and better population health overall. However, in order to foster the potential benefi t, there are data-related challenges that shouldn’t be overlooked. Research shows that clinicians express concerns related to issues such as data safety and security, interpretation, analysis, and dissemination, the fl exibility to adjust what to track and how records and summaries are presented, and workflow integration.

So what does this really mean and what can be done about it?

Dr Helene MOUTY Global Marketing Leader PAH, Actelion a Janssen Pharmaceutical company of Johnson & Johnson
Using an innovative approach to engage specialists in identifying signs of a rare disease.

Example of EchoRight™ in Pulmonary Hypertension (PH).

Despite significant progress in the management of pulmonary hypertension (PH), PH remains a severe disease. Since the symptoms are nonspecific and the disease is rare, its diagnosis is often delayed, which negatively impacts patients’ outcome. As per the 2015 European guidelines of cardiology, echocardiography examination plays a central role in the detection of PH. Given that the majority of heart disease in adults is related to the left ventricle, even though numerous educational efforts directed to echocardiographers had been developed, assessment of the right heart is often overlooked which contributes to a delayed or missed PH diagnosis, which also delay the treatment initiation for patients. To raise awareness, and to provide guidance on right heart echocardiographic examination, an educational app (EchoRight™) had been launched for a broad global audience of Health Care Professionals, mainly cardiologists/echocardiographers likely to see patients who are symptomatic or at risk of developing PH.

EchoRight™ relies on the innovative approach of serious gaming. Mobile apps for smartphones are changing the way clinicians and their patients approach medicine and health issues. Based on research performed over the last 5 years, 86% of health care professionals believe that health apps will increase their knowledge of patients’ conditions and nearly half of them say they will introduce the mobile apps to their practice in the next five years.

Helene Mouty will share her experience of working with a group of key stakeholders in developing and launching such a digital project, with the aim to benefit both to clinicians and patients suffering from PH. Engaging clinicians to learn how to detect a rare disease, for the benefit of patients isthe driver of the Echoright™ working team, and we will see how this initiative is positioned as a first step of a global mid- to long-term digital approach to medical education and is part of a global initiative, dedicated to further accelerating the diagnosis of this rare condition in populations at risk.

Silja Chouquet, Founder and CEO of merakoi will share how we can build digital trust with the online community effectively and ethically by engaging with patient experts, so they can benefi t from digital health solutions. What are the key touch-points in the patient journey where digital health solutions can add most value?